Mended Little HeartsGuide

The Mended Little HeartsGuide is available in:
English (online)
Spanish (online)
PDF for download
* A print version is supplied in every MLH Bravery Bag (contact us to learn more about obtaining a printed copy:

About the Little HeartsGuide:
This guide is a companion to the medical information you’ll receive from your child’s physicians.

Medical professionals and parents worked together to create this publication to empower families affected by CHD. It both provides accurate information in a world that can be frightening and difficult and offers answers to many questions you may have about caring for your child, yourself and the rest of your family.

Other Online Resources: 


Johns Hopkins (online CHD educational resource)

Area Pediatric Heart Centers/Family Resources:

University of Virgina Childrens Heart Center

UVA Fetal Heart Program

CHOP Fetal Heart Program

Children’s Heart Institute

Children’s National Medical Center

Hospitality Housing at Hopkins

Ronald McDonald House of Charlottesville

Ronald McDonald House

CHD Organizations

Pediatric Congenital Heart Association

Little Hearts

Sister’s By Heart

The Network of National Heart Associations:

American College of Cardiology : Cardiosmart

American Heart Association

Mended Hearts

Mended Little Hearts National Website

Mended Little Heart’s Blog

Saving Little Hearts

Congenital Heart Information Network

Adult Congenital Heart Association

Information on Disability:

Information on Medicaid waivers

Department of Social Services

VA Dept of Medical Assistance Services

Social Security Administration

Virginia Office for Protection and Advocacy

Other interests:

Caringbridge Support Site

Care Pages Support Site

American Academy of Pediatrics

Nutrition information

Organ Donation information