Mended Little HeartsGuide
The Mended Little HeartsGuide is available in:
English (online)
Spanish (online)
PDF for download
* A print version is supplied in every MLH Bravery Bag (contact us to learn more about obtaining a printed copy: mlhoftheshenandoahvalley@gmail.com)
About the Little HeartsGuide:
This guide is a companion to the medical information you’ll receive from your child’s physicians.
Medical professionals and parents worked together to create this publication to empower families affected by CHD. It both provides accurate information in a world that can be frightening and difficult and offers answers to many questions you may have about caring for your child, yourself and the rest of your family.
Other Online Resources:
Educational:
Johns Hopkins (online CHD educational resource)
Area Pediatric Heart Centers/Family Resources:
University of Virgina Childrens Heart Center
Children’s National Medical Center
Hospitality Housing at Hopkins
Ronald McDonald House of Charlottesville
CHD Organizations
Pediatric Congenital Heart Association
The Network of National Heart Associations:
American College of Cardiology : Cardiosmart
Mended Little Hearts National Website
Congenital Heart Information Network
Adult Congenital Heart Association
Information on Disability:
Information on Medicaid waivers
VA Dept of Medical Assistance Services
Social Security Administration
Virginia Office for Protection and Advocacy
Other interests:
American Academy of Pediatrics
